Amanda Jean Caruso, 28, passed away on September 9, 2025, following her thoughtful and courageous decision to undergo a second lung transplant. Though her life was far too short, it was filled with love, joy, resilience, and an enduring impact on all who were fortunate enough to know her.
Amanda is deeply mourned and lovingly remembered by her parents, Janice Roback Caruso and Steven Caruso; her siblings, Karli, Leeanna, and Trevor Caruso; her fiancé and true love, Matthew Henning; her future in-laws, Noreen and the late Michael Henning, and Michael Henning Jr.; her beloved Nana, Stephanie Roback; and her extended Roback and Caruso families. Her circle of love also includes countless cousins, aunts, uncles, friends, colleagues, and her devoted online community who were touched by her story.
Amanda’s journey was marked by extraordinary courage. Diagnosed with a rare lung disease as an infant, she received the gift of a double lung transplant at just 17 months old. This life-saving gift allowed her to enjoy many healthy years, during which she grew into the vibrant, determined, and loving woman everyone admired. Even as her health once again became complicated, Amanda faced her challenges with unmatched perseverance and never allowed her condition to define her. Instead, she focused on pursuing her dreams, cherishing her relationships, and embracing every moment with gratitude.
A proud graduate of Webster Thomas High School in 2014, Amanda continued her education with determination. She studied at the Continental School of Beauty, earning her esthetician’s license, before pursuing an Associate’s Degree in Health Information Technology at Monroe Community College. Most recently, she became a certified Oncology Data Specialist—a testament to her dedication and commitment to helping others.
Her professional life reflected her versatility and work ethic. Amanda’s first job at Bill Gray’s Restaurant instilled in her a sense of responsibility at a young age. She later worked as an esthetician at Hand and Stone Spa, as a surgical coordinator at Unity Hospital, and most recently at Rochester Regional Health, where she contributed to the Cancer Tumor Registry. Alongside these roles, Amanda built her own successful handmade jewelry business, Tiny Woman Creations, which she poured her creativity and heart into for over two years until her health required her to step back.
Amanda’s spirit reached beyond her immediate circles through her presence on social media, where she shared her journey with honesty, humor, and positivity. Since the age of 11, she had been creating content, and as she faced her health challenges, she allowed others to witness her resilience and strength. In doing so, she inspired thousands—perhaps millions—around the world to live with hope, gratitude, and courage.
Those who knew Amanda will remember her as a radiant soul, full of laughter, love, and kindness. She had a gift for lifting others up, making people feel seen and valued. Her joy, even in the face of difficulty, was contagious, and her legacy is one of light and perseverance.
Amanda’s passing leaves hearts broken, but her memory will forever live on in the countless lives she touched. Her family and friends take comfort in knowing she lived her 28 years fully, with courage, compassion, and purpose.
Calling hours will be held on Saturday, September 13, from 12 p.m. to 3 p.m. at Falvo Funeral Home, 1295 Fpt. Nine Mile Pt. Rd., Webster, N.Y. 14580.
In Amanda’s memory, her family kindly requests donations be made to Donate Life America. Most importantly, they encourage everyone to consider registering as an organ donor—an act that can change and save lives, just as Amanda’s life was blessed by this profound gift, not once but twice.
